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What is Rare Disease Day? - Rare Disease Day 2025

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
https://www.rarediseaseday.org/what-is-rare-disease-day/ - Details - Similar

Home - EURORDIS

EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.
https://www.eurordis.org/ - Details - Similar

Rare Disease Day 2025

Raising awareness for patients, families and carers around the world that are affected by rare diseases.
https://www.rarediseaseday.org/ - Details - Similar

News Archives - EURORDIS

About Medicines For Rare Diseases
https://www.eurordis.org/category/news/ - Details - Similar

Public meeting: FDA Rare Disease Day 2024 - 03/01/2024 | FDA

FDA will host Rare Disease Day, a virtual public meeting, on March 1, 2024 in global observance of Rare Disease Week. This year's Rare Disease Day is dedicated to patients and health care professionals.
https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/public-meeting-fda-rare-disease-day-2024-03012024 - Details - Similar

News Archives - Child Neurology Foundation

Start typing and press Enter to search
https://www.childneurologyfoundation.org/category/news/ - Details - Similar

Johnson Johnson: Changing health for humanity

We’re building a world where complex diseases are prevented and cured, treatments are smarter and less invasive—and solutions are personal.
https://www.jnj.com/ - Details - Similar

Mark Cuban Cost Plus Drug Co. lowers price of lifesaving drugs for Wil

Cuban's Cost Plus Drug Co. is selling generic drugs for Wilson disease, at the urging of Drew Katz.
https://www.inquirer.com/health/mark-cuban-drug-costs-drew-katz-rare-disease-20230623.html - Details - Similar

Industry Leader and Globally Recognized Patient Advocate John F. Crowl

Biotech entrepreneur, company founder, tireless patient advocate, and U.S. Navy combat veteran will guide the life science industry in its mission to feed, fuel and heal the world
https://www.bio.org/press-release/industry-leader-and-globally-recognized-patient-advocate-john-f-crowley-appointed - Details - Similar

Clinical Geneticist Mumbai, Best Treatment Genetic Disorder In India

With a rising trend in genetic disorders in India, there is a 'felt-need' for Genetic Experts like Dr. Shruti Bajaj to mitigate genetic diseases.
https://www.geneticsinindia.com/ - Details - Similar

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